Yeah -- I have Ehlers-Danlos Syndrome, which is one of those "this is one small fuckup in your genetic structure that affects EVERYTHING" syndromes. My case is only moderate (for which I give thanks daily) but 'moderate' is still really fucking painful and basically means "randomly dislocating joints once or twice a week instead of daily". Thank God for the good drugs and a doctor who's not afraid to prescribe them, man. (Moved down here to move in with sarah right about when we FINALLY found a possible explanation for all my symptoms thanks to research with Dr Google, and discovered, while researching to figure out what kind of doctor I'd need to get to for a diagnosis and treatment, that one of the top three specialists in the disorder practices here. Her office is literally right up the street from the house.)
It's been a bad few pain weeks, though, since we're playing around with my meds again to try to fix some of the side effects. That plus rain plus a really busy few weeks a few weeks ago that I still haven't recovered from == I'm basically only good for lying in bed like a useless lump and playing Candy Crush and reading Daredevil fic right now.
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Yeah -- I have Ehlers-Danlos Syndrome, which is one of those "this is one small fuckup in your genetic structure that affects EVERYTHING" syndromes. My case is only moderate (for which I give thanks daily) but 'moderate' is still really fucking painful and basically means "randomly dislocating joints once or twice a week instead of daily". Thank God for the good drugs and a doctor who's not afraid to prescribe them, man. (Moved down here to move in with![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
sarah right about when we FINALLY found a possible explanation for all my symptoms thanks to research with Dr Google, and discovered, while researching to figure out what kind of doctor I'd need to get to for a diagnosis and treatment, that one of the top three specialists in the disorder practices here. Her office is literally right up the street from the house.)
It's been a bad few pain weeks, though, since we're playing around with my meds again to try to fix some of the side effects. That plus rain plus a really busy few weeks a few weeks ago that I still haven't recovered from == I'm basically only good for lying in bed like a useless lump and playing Candy Crush and reading Daredevil fic right now.